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Hey, progressive types. Do you ever say anything like this?
‘Sexism in advertising is so lame.’
‘Denying people equal rights because you don’t like them reeks of insanity.’
‘This is going to cripple our progress.’
Can you perhaps see something wrong there?
My extra special favourite is when such turns of phrase are uttered during reflections on the speaker’s own bigotry.
‘I was blind to my privilege!’
‘I turned a deaf ear to those calling me out!’
‘It makes me crazy to see how ignorant I was.’
It’s especially spectacular when they’re talking about their ableism.
If you do not have the disability referenced, don’t use the word. I do not care if you think you are being thrillingly retro and ironic, because that is not how irony works. Irony requires that your audience understand that you are saying one thing and drawing on another meaning. If you are using an ableist term, you are basing your usage on disability=bad. You are not being ironic. You’re just being full of shit at the expense of people who cop a lot of it.
If you have a friend with the disability referenced in an insult who says it’s okay, you still shouldn’t use it generally, because your friend doesn’t speak for everyone with hir disability. For instance, a lot of people with mental illnesses are fine with ‘insane’ being used in a derogatory fashion, but it hurts a lot of other people. As a progressive, your language should be a reflection of your respect for people with disabilities, who are not a monolith. I would like to say that whether it’s okay to use a particular word should rely on consensus, but there are a few problems with this.
- PWD are not the consensus-makers in this society, and so any work we do is on the fringes.
- The feelings of those outside of whatever the hypothetical consensus matter, and I’m not about to set quotas or prescriptions.
- Standards and convictions change.
So if you really care, don’t use these words, because you cannot guarantee you aren’t hurting anyone.
If you’re one of those who likes to argue that meanings have changed and lame or whatever doesn’t have an ableist connotation anymore – well, that’s clearly not true, as should probably be evidenced by the entirety of ableist society. Even if it actually had moved far from its origins, that doesn’t negate the associations, the knowledge of its history that still cuts deep. And you should take a PWD telling you that a word is hurtful at hir say so, because it’s hir experience that matters here, not yours. You try telling me it’s not after living my life for just a day, feeling that sting, knowing how it is. You can only say there’s no ableist connotation because you choose to ignore the ableism; I never can.
Hearing lame used as an insult – lame especially because that seems to be the most in vogue right now – makes me feel sick in my stomach, and panicky, and afraid, because it is evidence that the speaker finds people with disabilities to be low. Low enough to be a source of synonyms for bad. Low enough so that the real people needn’t bother to think through their words. I feel scared and sick because I have been through no small amount of shit in my life as a result of the attitudes that kind of language betrays. Hearing those words from someone means that I’m not safe with them. I know that this is one more person who doesn’t consider me as one.
If you think you should use a word because no other has the same impact, well, you’re right about the impact. Your usage has such an impact because it draws its power from disability=bad. You are forming a powerful sentence from disablism, our deep-set pain.
It’s so much easier and better to just change your words. If you still insist on such usage, that’s lazy and cruel. If you’re not sure if your use of a word is offensive, err on the side of caution.
Another message to take away is this.
- If you are calling yourself progressive
- and you are harming people with disabilities
- you are not, in fact, progressive.
Previously in this thought process: In which homework is assigned and This is what an activist looks like.
My mother changed her name back to her pre-marital name a few years back now.
She’s the most darling person I know. She seems to have gotten on many charities’ phone lists over the years. When we’re hanging out together and the phone rings, this is what I all too often hear as her side of the conversation:
‘Hi, yes, that’s not my name though… It used to be Mrs Oldname, now it’s Ms Name… I mean you’ve got my details wrong… Actually, I donated some money when you called me before and the operator promised me they’d changed my record then. And this has happened before… My name has changed, can you remove my old name from your system?… I think you do really good work, it’s not that… I just want you to have my name right because this is getting- … I know charities aren’t a part of the do not call scheme, I’m asking-’
You’re asking the woman for money. Don’t deny her identity while doing so.
One organisation with which I was registered required me to yearly fill out a form listing my personal details, including my parents’ names. This was primarily aimed at correcting any out of date information they might have on file. When my mother changed her name and title, I submitted these changes. I did it again and again. In letters, in forms, in everything, the organisation ignored these changes. I made a fuss every time. For years. Eventually I ended up yelling, tearful, in public. Someone nipped off to the registration office and got the records to reflect my mother’s actual name. But she was still listed as a Mrs, not her preferred Ms. She probably still is.
None of this shit happened when she changed her name upon marriage.
How dare this amazing, wonderful being claim her own identity?
Note: I got her to read this through before publishing. An objection: ‘Can a lady say “shit”?’ My response to this sort of thing is always ‘well, I’m a lady, and I [whatever], so yes.’ It’s one of our running jokes.
Note II: Regarding the title, yes, I know it’s a mishmash of quotes. I went to drama school, I can do what I like.
I’m going to talk about accessibility. I want you to have a think. Then I want you to pause, reflect and keep thinking.
Before I start, think about what disability access means to you. What sort of things does accessibility require? Make a note of what comes to your head.
While you’re working on that, I’m going to tell you what I often do when I arrive somewhere new. I scan my surroundings to determine how accessible the particular space is. Is the furniture too high or too low or too small? Is there enough space for a wheelchair/scooter to pass through comfortably (with space left over for a companion)? Are there windows? Is there any mold? fresh paint? air freshener? Is there enough space to breathe or get away from other people? Is the lift/ramp in good order and close by? Are there railings? Are there (solid, multiple) chairs? Are there any sharp edges or prominent features that could make movement unsafe? These are just a few of the things that may go through my mind. And I do it all as quickly and discreetly as I can, because I don’t want to stand out to any abled folk who may be observing me. And you know what? Most of these things, most of the time, aren’t relevant to my disability. I’m looking out for my fellow PWD. Which is to say that these things are not that hard to pick up.
Now, when you were thinking about disability access, you probably thought of transcripts and ramps and disabled bathrooms. And those things are important. But did you think about invisible access for invisible disabilities? Where well-known accessibility measures like those transcripts, ramps and bathrooms are often not available (or not properly) the measures that don’t immediately spring to an abled person’s mind don’t have a hope in hell.* And, speaking as someone with an invisible chronic illness, having to out myself in order to perhaps be granted access, with the very real possibility of not being believed, is one of the most unpleasant parts of my life.** I doubt you thought about access to services for people who aren’t accessing them in person. I doubt you’ve ever thought about how to give directions without visual reference. In fact, I bet most of the things you thought of were those that were in your face.
Which brings me to my next point. Accessibility is not just about alternatives and gadgets and adaptations. It’s about you.*** It’s about all the abled people who are in charge of accessibility measures. And that’s not just those of you in a position of authority, that’s you making your way down the street. Remember, you often don’t know who is and who isn’t a PWD, and you don’t know the kind of impact you’re having on them. The world is designed to suit the abled, and it’s every last one of you impacting us. It’s about your attitudes making our lives harder. (Did you ever consider how awful it is to have a loud, public discussion of one’s needs? Did you ever consider that forcing your idea of help on us might be detrimental? Did you consider the kind of devastation you privileging your perceptions over our experiences can lead to?****) It’s about whether you decide our enjoyment, our livelihoods, our life experiences and our humanity are worth your attention.
I am asking for your attention.
Now, I want you to think radically. Accessibility should not be framed as making adaptations to suit those others, those deviant disabled bodies and minds. If there is a space, text, service, mechanism, happening, situation, tradition, something that people are going to engage with, everyone needs to be accommodated.***** My point being. Don’t think of us as others, even deserving others, you must reach out to and adapt to. We’re not brave, broken little souls. We’re human beings. Think of every single person having different needs and circumstances, and centring those people who are having a tougher time of it. Think of providing everyone with what they need. If someone needs more than most, they ought to be given it. Not because they are other, but because they are a person. We’re no more other, or tiresome, or disgusting than you with your various troubles, quirks and loves. The only difference between you and me is that the world has dictated that I am low and you are whole. That’s all.
Think of privileging those bodies and minds that are marginalised in so many spaces. If you think that it’s too daunting, too much, consider what it means for PWD and consider that you’d be happy to do it if it was you. You adapt to circumstances all the time, and you may want to examine your motivations if you’re reluctant to accommodate PWD. Do whatever you can do with the resources you have. Access for my kind of people should not be an afterthought, it should be right there, in your plan, in your consciousness, because it is at the very least as vital as the kind of attention you give everybody else.
I want you to rethink access. Mostly, I want you to THINK.
I have some related links for you to help you with the thinking:
Alena of Perspectives from a Blind Point of View – fabulous blog, by the way – asks What Does Accessibility Mean to Me?
You may have heard of feminist science fiction convention Wiscon. I haven’t attended myself, but they seem pretty accessible from their website. This is an example of doing it right.
WildlyParenthetical delves into invisible disabilities and how they get that way.
I picked up the phrase ‘invisible access for invisible disabilities’ from Lauredhel. She has some suggestions on the subject here.
If you want to learn more about what kind of thing can constitute privileging your perceptions over our lived experience, specific to invisible illness, see annaham’s Invisible Illness Bingo and Invisible Illness Bingo 2: Back for Revenge.
See Jo Tamar’s Accessibility, choice, accomodation and equality. Because alternatives aren’t always good enough, and they’re frequently a tool for demeaning us further.
Cripchick and commenters have lots of suggestions.
Also, this.
Remember that all this, this post, these links, are background. There is no prescriptive means of dealing with PWD; we are not a monolith. Consider the person you’re dealing with as an individual with individual needs. I can barely believe I actually had to type that.
—
*Actually, hell’s probably more accessible than some of the places I’ve been to.
**And you would just laugh at how utterly bizarre that is if you knew the nature of my illness.
*** For me personally, it’s mostly about you. Other people have a different ratio with regard to these things.
**** ‘You look much better today.’ ‘Maybe you should try losing weight.’ ‘Maybe you’re just tired.’ ‘Are you sure that’s what happened?’ ‘My cousin’s boss’ sister’s friend’s tried this thing you should try.’ Just don’t. How dare you presume that we don’t know how to handle ourselves? If we want help, we will most likely ask. These suggestions act to obscure problems, meaning that we’re not given the help we want/need because everyone else has moved on, ’cause you’ve already solved it, right? You do not know better than us.
***** Were you thinking in terms of access to buildings? Open your mind. Think about daily experience.
Note: The possible disclaimer applies to this post.
I was checking out a commenter’s blog, as I usually do, when I came across a post called “A Respectful Breast-Man”. (Snipped version with comments here, full version without comments here). It’s writer Thomas’ meditations on staring at women’s breasts. In the course of the post, he asks ‘I was wondering what women thought about this. What’s it like for them growing up with this, and do they have an appreciation for the male perspective (so to speak)?’ Here’s the answer I gave him.
I’m a woman with two of those! Perhaps I can answer.
The short answer is, it’s not at all pleasant.
Imagine being a girl, maybe about twelve. One day, these things start growing on your chest. You’re pretty happy, because that’s what TV and the magazines and your peers tell you to want, right? The bigger the better. (Or maybe you’re uncomfortable, because you don’t want all your school friends to make fun of you if they get too big, and anyway, you’ve got a 16-year-old sister. You see how all those boys and men see her. They almost let the saliva drip down her shirt. How can she let them do that to her? (Oh, sweetheart, you do not yet know.))
So, your developing sexuality is getting interfered with because all these weird men, much older than you, are suddenly seeing you as sexually available. And now it’s boys your age, too. At school, on the bus, the kid across the street. Because those older men, the media, the whole of patriarchal society is whispering to those boys that women are not as good, not like us, and you can stare at their breasts all you like. But you’re just trying to head to the movies with your friends, or pick up some bread and milk. Just going about your life. It doesn’t make much of a difference if you cover up, because they’re still there, like flashing lights drawing people to your chest. You begin to feel a bit dehumanised.
Later, you’ve grown up a bit. You’re at a party in high school, and it’s all very exciting. There’s this guy you kind of like. So eventually your paths collide and you say, ‘hi, how’re you?’ And he glances briefly at your face, then his eyes are drawn, seemingly inexorably, to your breasts. Well, at least he thinks I’m hot, you think. And you try asking him about a mutual friend, and a class you share, but he’s giving you monosyllabic answers. And at first you think, all right, teenage hormones. It’s just biology. But surely this dude could tear his eyes away… but no. Eventually you scurry off, humiliated. But shouldn’t you like the attention? And what did you expect for going out in public, especially in a low-cut top? You come to realize: no matter what you wear, or how you behave – all the things we’re told good girls can do to protect themselves – some dude will always think it’s okay. And it’s not just biology, you can’t separate that from social conditioning. (And over the years, you see guys justifying their behaviour as a biological imperative, but you know it’s just an excuse. They could stop if they wanted to. But they don’t respect you enough to stop.)
And in your twenties, you’re in a meeting. You’ve got some financial matters to discuss, but you’re not getting far because the man you need to help you is instead trying to get an angle down your shirt. So are you going to object and make this hard for yourself? Or do you let yourself be this man’s sex object for a while in the hopes of getting a successful outcome for your meeting? Another day. Another chip off your pride and self-esteem and sense of personhood.
And in your thirties, you have a kid. You decide to breastfeed. You get a bunch of new men who like to look at your breasts, sometimes a little slack-jawed, because they’ve gotten bigger with milk. You just can’t win. Sometimes, when your baby starts crying and your breasts are just aching with all the milk, you’ve got to feed your baby right then and there. So you sit and take your breast out and your baby latches on. But now – ewwwwww. People tell you that’s disgusting. You’re not a cow, you’re a woman. Can’t you hide that under a blanket? Because people are startled to see a breast fulfill its biological function. People are used to thinking of breasts as sexy. But yours work hard to feed your baby, and you’re proud of them, and why can’t people just shut up and let you feed your kid? At least everyone is turning away from your breasts, for once.
And in your forties, the kid has been weaned, and now your breasts are saggy. The world is bombarding you with the message that your saggy breasts are disgusting. Kind of an object of fascination. But that doesn’t stop men, men, yet more men, trying to look down your shirt.
You can never win. And the years go on…
All these men, ogling your poor breasts over the years. They just sort of glaze over while looking at your breasts. It’s clear that if they were thinking about you as a person in that moment, just like them, with regular wants and worries, they would not look at your breasts like that. You grow intimately acquainted with their perspective. These guys think that staring at your breasts is their due. They’re nice guys, they think to themselves, where’s the harm in looking? Someone who thinks that? Is not a nice guy.
In this scenario, I’ve given you the life of a white, heterosexual, middle-class, able, thin, cis woman. You probably didn’t pick up on most of those things, but you may if you go back and have another read. (Nobody was saying that you, as a disabled woman, shouldn’t have children or saw you as unsexual or took advantage of your disability and tried to assault you. Nobody said that your breasts were the only good thing about your fat body. Just a couple of examples.) So imagine how complicated having one’s breasts stared at can get when you’re dealing with multiple oppressions. And on top of all that, imagine constantly factoring the possibility of men staring at your breasts when you’re planning what to wear today, or when you sit down in a low-cut top, or when you’re in a situation in which you want to be taken seriously. You might look at a woman’s breasts for a few seconds. She’s got to put up with the same thing for decades.
I suppose you’re wondering why a lot of women don’t generally speak up. Women are taught to be submissive, subsume our own needs to get others’ met. Yes, even in this day and age. That kind of training lingers on. We’re taught not to rock the boat, because people will think we’re nasty bitches. So we put up with it – maybe he’ll stop soon, maybe he’ll look at my face, how can he do that while he’s talking to me? And it feels awful. To this day, I’ve never told a man to move his eyes to my face, because I’m frozen with shock, after all this time, that someone out there really thinks it’s acceptable to ogle my breasts; also because I do not want to make the situation awkward.
Because when women do speak up about ogling? Sometimes the dude looks embarrassed, apologises and turns away. But often, the situation just gets awkward. So maybe the guy goes away – if he doesn’t snatch a few more seconds to look (oh wow, does he think I can’t see what he’s doing?). But then your friend might say, ‘gee, that was a bit harsh. Him looking wasn’t doing any harm.’ And you’re just that bitch who had to go make things all weird. But this gaze does do harm. You cannot separate the breasts from the person who has them. (I would refer you to Karen Healey’s poem More About Them.)
So, what is a woman to do? There’ll always be some other guy who thinks it’s okay.
Breasts are wonderful things. There’s something more important than that though. At the end of the day, they are a part of a living person. Your respect for the women around you ought to govern your next move.
To recap: I identify as non-white (the language I use to refer to myself changes though; I’ve yet to find anything I’m really comfortable with). I have blue eyes and pale skin. (I have a bittersweet joke that I’m whiter than most white people.) I often take advantage of this and keep quiet about my ethnicity around people I don’t know. Because it’s just another thing to talk about, another thing through which a dominant group constructs me as less than, because it’s just too much.
This leads to some interesting patterns.
Not knowing my background, white people tend to claim me as one of their own. I have sat through so many racist “jokes” cracked by people who thought I was in on them. I think this is a reflection of what I like to call the default human mentality. If you’re a member of a dominant group, and representations of how normal you are are just everywhere, you’re likely to think that everyone else is of that group unless they’re obviously not. I know that’s something I’ve been struggling with as a heterosexual person.
Not knowing my background, non-white people are far less likely to make assumptions. This can be reassuring and comforting, but it can be disconcerting when I’ve decided I’m going to let people think I’m white in a particular situation, especially when I’m outed among white people.
Being able to pass – or, more, being passed – as white is a privilege, it really is. This is never more apparent then when I start to talk about my ethnicity. I watch the faces of the white people I am in conversation with. All too often, there’s a quick series of emotions that run over their faces.
It goes like this. First, there’s surprise. Then, there’s a sheepish look (did I say anything that could have offended her? I should have realised…). Then a bit of internal searching, going through the back catalogue of experiences with me to see if there were any clues. After that comes indignance: hey, wait a minute, it’s not my fault and how could I have known and anyway race is a sensitive thing so I’d best keep myself out of it. It’s then that most of them realise that I can see what’s going on in their heads. I take a moment to chuckle inside. Finally, it goes one of four ways. They continue to treat me as a person, with little deferences to my particular circumstances where required (which is, you know, very nice and exactly the sort of thing you ought to do, white people). They act exactly as they did before (which is also nice, but kind of missing the point). They totally change the way they interact with me, from the way they angle their bodies to their tone of voice. Or, they shut down. With regard to this last, sometimes I wonder, is it because they feel betrayed? Are they embarrassed? Do they just not like non-white people?
So, I am no longer coded as a white person, or there is no longer any ambiguity. And there are mixed emotions there. On the one hand, it’s another piece of oppression I’ve got to wade my way through with this particular person. On the other, it’s so sweet to be identified as what I really am, to no longer modify my speech and mannerisms and what have you to conform to whiteness.
But how do non-white people react, you ask? Sometimes a ‘really?’ but more often a look of non-surprise or a ‘yeah, I thought so’ and, more often than that, happily, thankfully, we just continue with our business.
Being invisible, playing white, has only the illusion of freedom. I’m still racism’s perpetual puppet, waiting until I don’t have to be scared.
We’ll be back to normal next month, once DUFC’s over. Don’t forget to send in your pieces! I’ve recieved a lot of excellent nominations already.
Just the headlines. They speak for themselves.
TR Xands: You don’t have to mean it to hate
Anonymous Shaker Couple: Separate and Not Equal
Liss: This is What a Feminist Secretary of State Sounds Like,
Feel the Homomentum, Why Use a Teaspoon When You’ve Got a Tablespoon? and
We’re So Winning
Pilgrim Soul: On Thinking of Human Beings as Trash, And Other Tragedies of Resources
Jo Tamar: Blogging Against Disablism Day – and generally blogging in support of other groups
Sarah MC: Pain-Free is a Privilege








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